Privacy vs. Secrecy in Egg Donor Conception: What’s the Difference and Why It Matters

Written by: Julia Gytri

There’s a psychological difference most people don’t think about when it comes to privacy (a healthy boundary) versus secrecy (a withholding rooted in shame). For intended parents, learning the difference may be one of the most important things you do for your future child. 

Why this question feels so high-stakes

If you are using (or considering using) donor eggs to build your family, there is a question that tends to come up frequently. It’ll often feel like a bit of a whisper, it’ll often speak up at 2 a.m.: 

Should I tell my child they are donor-conceived? 

And underneath that question is an even more loaded one: Who else needs to know? Parents? In-laws? The pediatrician? Anyone in the school pickup line?  

This decision can feel enormous because it touches almost everything at once: your child’s identity, your own sense of family, your privacy, every relationship you have, and the story you will eventually tell out loud and put down on paper. 

If you can believe it, a generation ago, many fertility clinics actively counseled parents not to talk about donor conception. Wild, right? The field has since moved decisively in the other direction, encouraging early, age-appropriate openness with donor-conceived children. But that shift has left many parents floating in a confusing nether region: they’ve heard they “should” tell, but no one has handed them a framework, a script, or a way to think about how the rest of the world plays into their story. 

The most useful framework we’ve come across (and the one that resolves most of the confusion) comes from renowned expert Lisa Schuman, LCSW, who has spent nearly three decades counseling intended parents from all walks of life, and is the co-author of Building Your Family: The Complete Guide to Donor Conception. The way she frames this is simple, but it changes everything: privacy and secrecy are not the same thing. 

Defining privacy vs. secrecy

Schuman puts it plainly: “This quandary can be framed as a decision between privacy vs. secrecy. Feelings of shame are typically part of secrecy, whereas everyone is entitled to their privacy.” 

In other words 

  • Privacy is a personal right. You decide who in your life knows the details of how your family was built. That decision can change as your child grows, as your circle of trust expands, as your comfort levels grow. Privacy is healthy.
  • Secrecy, in this instance, is built on shame. It’s the unspoken belief that something about how your family was built must be hidden in order to be preserved. It is most often directed at donor-conceived children themselves, oremployed to ensure they never find out. Unfortunately, it is the variable most consistently associated with harm in the donor-conceived community once they grow up.

The cleanest line you can draw, the one we keep coming back to is to (again) tell your child early, calmly, and often. Carefully choose who else in your life knows and on what timeline. That is privacy. The thing to avoid is a story your child cannot hear. You should never be making wide eyes at someone over your child’s head or asking someone to stop talking in their presence. You control the story better than that. 

The psychological impact of each approach

We learned this the hard way once before. Schuman points to a generation of children adopted in the 1960s and 1970s, many of whom were raised under instructions from agencies “not to tell.” As adults, those children have been strikingly consistent about the cost: identity confusion, distrust of their parents, and in some cases real anger at having been kept from their own story. 

We are now learning the same lesson a second time with donor-conceived adults. The pattern is the same. The greatest harm is not the use of a donor. It is the late, often accidental discovery that a fundamental part of one’s origin story was hidden. A relative slips, a half-sibling appears on a consumer DNA site, or a paperwork mistake exposes the truth at the wrong moment. 

By contrast, the donor-conceived people Schuman and other researchers describe today, often children of single parents and openly LGBTQIA+ parents who were typically told from the very beginning, are doing well. The shame model has been replaced with an integration model. Children grow up never not knowing. Their story is simply their story. 

The takeaway is not that disclosure is risky. It is that non-disclosure is actually the riskier path, and that, in an era of $99 spit kits, biological half-sibling matches, and an era where the discovery of donor identity is ever more likely than not, it is also increasingly difficult to maintain. 

What experts recommend today

The modern best practice articulated by Schuman, supported by decades of donor-conception research from scholars such as Dr. Vasanti Jadva at the University of Cambridge and reflected in guidance from the American Society for Reproductive Medicine (ASRM), points in one direction: tell your child early, tell them often, and create a household where donor conception can be discussed openly and without shame. 

Two distinctions are worth knowing because they untangle most of the worry parents bring into the conversation. 

1. Structural openness vs. communication openness

Jadva and colleagues distinguish between structural openness (whether you have any contact relationship with the donor) and communication openness (the way parents talk with their child about the donor over time). Even children without a fully open donor relationship do very well when their parents communicate openly. When questions are welcome, the child senses that their parents feel good about how they were built. 

2. Telling once vs. The “early and often” model

Avoid building up to any one single moment of disclosure. The healthier model is likely a steady stream of age-appropriate language that begins before your child can understand the words, meaning they will grow up with them. As Schuman writes, “Sharing your donor-conceived child’s information to them is essential, disclosing to everyone is not.” The audience that matters most is your child, and the timeline is their entire childhood. 

Age-appropriate disclosure: what it can look like

Parents often ask for ages and milestones. There is no universal script, but there is a useful arc built from the research, modern storybooks now widely available, and the lived experience of thousands of donor-conceived families. Here’s a playbook (not a rulebook): 

  • Before birth (and the first 12 months). Practice out loud. Read your story to your bump, to a partner, to a trusted friend… but the audience here is you. The goal is to get the words out before there are little ears attached. As Schuman explains, parents who practice have time to work out the kinks.
  • Ages 1–3. Use the language casually in your child’s presence. Bath time, bedtime, in the car. A toddler in Schuman’s book famously thought “donor” meant “donut.” That’s perfectly fine. The point is not comprehension. The point is familiarity, so that the words always belong in your household.
  • Ages 4–7. Story-based explanations land well here. “A kind person helped [your parent(s)] with a small but very important part.” Children’s books written specifically for donor-conceived families do a lot of heavy lifting. Welcome questions, but there’s no need to over-explain.
  • Ages 8–12. Bring in real biology, real terms, and real curiosity. Children at this age may want to know what the donor looked like or liked to do, or whether they have any half-siblings. Honest, calm answers matter more than perfect ones.
  • Adolescence. Identity questions intensify here for almost all teenagers. Frankly, that is just normal teenage business, not a donor-conception complication. By this point, your teen has been living with the story for years. What they need is for you be a conversation partner as they decide what their story means to them.

Throughout, Schuman stresses that the goal is clear: a household where the topic is normal, the donor can be discussed with ease, and the child grows up with the words already familiar. 

Scripts and language that feel natural (not clinical)

Most intended parents we hear from are not afraid of the concept. They are afraid of the sentence. Here are a few scripts borrowed from Schuman’s work and from families who’ve been living with this language for years that you can rewrite to sound like you. 

  • To your baby: “We wanted you so much. A wonderful person helped us by sharing a little something so we could grow you. That part of our story is one of our favorite parts.”
  • To your toddler: “Some families need a doctor’s help to grow a baby. Ours did. Someone shared an egg, and that helped you become you.”
  • To your school-aged child: “Your body started with an egg from a person called a donor, and a tiny cell from Daddy. The doctors put them together, and then you grew inside Mommy. That’s how our family was built.”
  • To a curious adult: “We used a donor to build our family. The details are our child’s story to share, so we keep those private, but we’re happy to talk about the experience.”
  • To a well-meaning but intrusive question: “Our child’s genetic information is theirs to share, when and if they choose. We’d rather talk about [insert something more appropriate].”

Notice the pattern. With your child, the language is warm and matter-of-fact. With everyone else, the language gently centers your child’s ownership of their own story. That single shift — “this is my child’s story to tell” — solves an enormous amount of social awkwardness. 

Common fears and what actually happens

A few of the worries we hear most often, and what experience and research actually suggest. 

  • “My child won’t feel like mine.” Schuman, who has worked with thousands of donor-conception families and used a donor egg herself, has written that in nearly thirty years she has never seen a parent fail to fall deeply in love with their child. Bonding is not a switch. It is a process, and it almost always arrives.
  • “My child will love the donor more than us.” Research on donor-conceived young adults consistently finds that interest in the donor (even when contact is made) does not displace the parent–child relationship. Curiosity about origins and love for parents are wholly different things. Give your child credit. They can hold both at once.
  • “I don’t want to make a big deal out of nothing.” The “early and often” model is specifically designed to prevent it from becoming a big deal. The thing that turns donor conception into a “big deal” is silence that turns intosurprise.

Building a family culture of openness

Openness, in the end, is less a single conversation than a family culture. It’s the small things.  

Your child’s baby book that mentions the donor on the same page as the hospital. 

The way you mention the donor at dinner without lowering your voice. 

The library shelf that includes a book or two about how families are built. 

The pediatrician you choose because they’re donor-conception literate. 

The friend you trust enough to be honest with. 

It is also a posture, not a performance. No child needs a perfect speech. They need parents who empower them. 

At Fairfax EggBank, this is the code we follow for the families and donors we work with. We provide clear, transparent information about our donors and our process, expanded genetic testing so families have the information they’llwant decades from now, and ID-option choices that reflect the modern reality of donor conception. The same logic that drives those choices on our side is the logic this article is about on yours: openness, not secrecy, is what protects the family being built. 

Privacy is yours to keep. Secrecy is the part to let go of. The space in between is where most healthy donor-conception families live. 

References

  • Ethics Committee of the American Society for Reproductive Medicine. “Informing Offspring of Their Conception by Gamete or Embryo Donation: An Ethics Committee Opinion.” Fertility and Sterility, vol. 109, no. 4, 2018, pp. 601–605.
  • Readings, Jennifer, Susan Blake, Vasanti Jadva, and Susan Golombok. “Secrecy, Disclosure and Everything in-Between: Decisions of Parents of Children Conceived by Donor Insemination, Egg Donation and Surrogacy.” Reproductive BioMedicine Online, vol. 22, no. 5, 2011, pp. 485–495.
  • Schuman, Lisa. “Donor Conception Openness: What’s Important.” Psychology Today, 2026.
  • Schuman, Lisa. “Sharing Your Egg or Sperm Donor Story with Others…Or Not.” Psychology Today, 2024.
  • Schuman, Lisa. “Secrecy vs. Privacy.” Donor Conception Conversations, Building Your Family Podcast, 2023.
  • Schuman, Lisa, and Mark Leondires. Building Your Family: The Complete Guide to Donor Conception. Penguin Random House, 2024.
  • The Center for Family Building. “Building Your Family Community.” The Center for Family Building.

 

 

About the Author

Julia Gytri is a multidisciplinary writer and healthcare advocate bridging the arts and public health through a hybrid career rooted in education, communications, and collaboration. Her mission is to improve the standard of care for those living with rare, stigmatized, and/or under-researched conditions through storytelling in every project she undertakes.

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